Ponderings

My head may still be swept up in all this dizziness, but a few things have been occurring to me during random moments. To wit:

1. As much as we’re getting word out, the fact that neither John nor I have yet told our families about the publication is rather curious. Or perhaps it isn’t by virtue of the fact that nobody likes to be reminded of ugly, heartbreaking times. Particularly families.

2. One of the first things I hear is how proud my mother would have been of us. I honestly think part of her would have been. The other part of me wonders if she’s cringing because we aired what she called “dirty laundry”. Whenever I think that, I suddenly feel very embarrassed.

3. Re #2 — on the other hand, my mother was a take-no-prisoners type: Just say it. Don’t prettify, don’t gloss. In that sense, no, I shouldn’t be embarrassed. Then I feel angry because why did I spend half my lifetime prettifying and glossing everything whenever I was in her presence?

4. My mother was the undisputed keeper of family stories. She could entertain you for hours, painting pictures with words with characters you could swear had to be fictional. They weren’t. Neither were the stories. For every story she told time and again, though, there were several she either never or barely mentioned. I’ve found out a bit more about them these past couple of years, but for the most part, she was right: She’d take them to the grave before I’d ever know the full truth. Why couldn’t she tell me?

5. Sustained grief: Must make a post about that.

More later. It’s now bedtime (some of us work in the very early AM…)

First!

So, there’s now a review up on Amazon. The first one. And it’s the first time to get feedback from someone none of us know (except by very slight interaction on Daily Kos), and who hadn’t seen an earlier version of the book at some point in time.

Having a fresh, objective review of the book posted is valuable for several reasons. One, it is an affirmation that what we tried to do with the book seems to have worked, at least for this reader. Two, having a review up (and a rating) will help give others some idea of what the book is about and how well it is done that doesn’t come across as ad copy. Which will hopefully encourage others to buy the book and perhaps even write their own reviews (hint, hint).

So, something of a milestone, albeit a small one.

Jim D.

It’s a start.

So, had a chuckle: we’re #63,298 in Amazon’s rankings after a couple of day’s sales. And, actually, #31 in “Alzheimer’s” tagged books. In other words, there’s a long ways to go until “bestseller” status.

But that’s OK. It’s actually a decent start, considering we haven’t even gotten all the ‘thank you’ and promotional copies delivered yet. I expect that it’ll take a little while for people to read the book (though I have already heard someone caring for her mom that it compelled her to read more of it than she intended at first glance), and then word to start to get out. There aren’t even any reviews or ratings on Amazon/Kindle for the book yet, after all.

You can help, if you are so inclined. Pass the news of the book being out to people you know or forums where such things are discussed. Write a review if/when you get a chance to read the book. And if you have any contacts in the media who may be interested, be sure to let them know. I am completely comfortable in telling anyone who has an opinion about the book to be honest in what they say; I know the book isn’t perfect, but I am confident that it is a good product which will help people.

At least, that is our hope.

Jim D.

Several signed copies are now out.

The Milton Public Library has two copies – one for the Milton Writers Collection and one for circulation. The Milton Council on Aging has a copy. “The Good Lawyer” – Dagmar Pollex – has a copy. The Milton Times has a copy. And Suzette Standring of MATV’s “It’s All Write with Suzette Standring” now has a copy. By Saturday, printed copies will be en route to several of the beta readers, with our gratitude and appreciation.

So far, response has been very positive. Thank you, all.

OMG OMG OMG

The promotional copies are here!

The box arrived after dinner last night, during that lull between walking the dogs and getting ready for bed. I had the honor of opening it and lifting out the very first actual book.

“What are you thinking?” I was asked. “I can tell you’ve got so many emotions flying through you right now.”

I shook my head because, that was correct — a mix of emotions coupled with that feeling of suspended disbelief that, wait…this is a dream, isn’t it? It has to be. I can’t be sitting here holding a book, staring at my name and at a photo of my mother on the cover, can I?

Stranger things have happened, but for me, this is going to be one very strange ride. I’m still trying to wrap my head around it.

“That’s one small step for a book, one giant leap for the authors.”

It’s Official: Her Final Year has launched.

From the announcement we’re sending out:

Her Final Year is a different kind of memoir. It’s not just a “looking back” at the experience of being a care-provider for a loved one with dementia. Rather, it is an unfolding of what happens during the care-giving experience, as it happens. As it happened to us.

Millions of Americans have a family member who has some kind of age-related dementia. Millions more will be facing the issues of caring for such a family member in the future. A recent study by the AARP indicates that the value of the care-giving provided by families is over $400 Billion a year. There is a good chance that you know someone who will find themselves in this role – or you may yourself be there.

This book can help you understand what that role is like. What it was like for two families, as they experienced it, as seen through their emails and blog/journal posts written as it was happening. It is honest. It is sometimes embarrassing. It is real, not a sugar-coated version of care-giving. And because it is real, it can help give you insight into the mix of emotions and stresses that anyone going through caring for a loved one will experience from beginning to end, and then through care-giver recovery.

Check out the website for more information. You can order a paperback copy of the book from our e-commerce site, and a Kindle version here. If you don’t have a Kindle, you can still read the book in electronic format on a wide variety of computers and mobile devices with the free Kindle emulator. Remember, $1.00 from every sale (either paperback or Kindle version) will go to support organizations which help people with dementia, Alzheimer’s or hospice.

So, “like” us on Facebook. +1 us on Google. And spread the word to anyone you know who might benefit from a new and different kind of care-giving memoir.

Jim Downey

“Please keep hands and feet inside the car.”

Well, I think we’re about ready to launch Her Final Year. Preliminary feedback on the website has all been very good – seems that the site works for a variety of different platforms and browsers. The book is still working its way through the Amazon system, is available on our e-commerce site as well as through the Kindle Store but not yet in Amazon’s general titles – though I expect that will change sometime today. The first shipment of paperbacks should arrive sometime today or tomorrow, and they can then be sent to those who helped us along the way as a thank-you. We’ve started to contact media outlets, and I already know that the newspaper I used to write for is planning on doing a piece about the book. And I’ve started to work up an article for guns.com about “Alzheimer’s & firearms.” Announcements are being made to send to friends and colleagues. In short, we’re almost ready.

It feels like those last moments waiting for a thrill ride, where the announcement comes over the loudspeaker reminding you to keep your hands and feet inside the car. The adrenaline surges, your hair stands on end, and a stupid half-fearful smile tries to form on your lips. In a moment, it will all start, and only then will you find out whether the ride was worth the cost of admission.

Jim Downey

(Cross posted to my personal blog.)

Welcome to Her Final Year

We’re glad you’re here.  We hope this website and the blog will be a supplement to the book and that you will find answers, or at least kindred spirits, here.  Please leave comments to blog posts or use the “contact us” link to keep in touch.

As we go along, we expect all four of us to be posting here now and then.  If you have any questions you would like us to answer, let us know!

- Martha